Your Child Deserves
the World's Best
Specialist.
We Find Them.
Most children with rare or undiagnosed conditions spend years being passed between specialists who have never seen their condition before. The right pediatric expert — at the right US hospital — can change everything. MediPocket navigates that path for your family. From anywhere in the world. Free to start.
What Parents of Children with
Rare Conditions Already Know
You have already heard "we don't know."
You have already heard "there is nothing more we can do."
You have already heard "this condition is too rare for us to have experience with."
That is what MediPocket does.
"Our child has no diagnosis after years of testing. No one knows what this is."
Undiagnosed cases are one of our most important services. We connect directly to NIH Undiagnosed Diseases Network, whole genome sequencing programs, and multidisciplinary diagnostic teams with the highest solve rates in the world.
"We have a diagnosis. But our doctors say there is no treatment available here."
FDA-approved gene therapies now exist for SMA, sickle cell, hemophilia A and B, SCID, and more. Active clinical trials are open for DMD, Rett syndrome, Angelman, and dozens of other conditions. The answer may already exist.
"We know there are specialists and trials in the US. We don't know how to reach them."
That is exactly what MediPocket does. We identify the right specialist, navigate the records, coordinate the consultation, and if needed — the travel, visa, housing, and interpreter. Everything.
If you are in any of these moments — submit your child's case. Free. Today.
Submit Your Child's Case — Free →Pediatric Conditions We Specialise In
Every condition below has a US pediatric specialist who focuses on it. We connect your family to them — not to whoever is available, but to the physician who has seen your child's exact condition hundreds of times.
Your Child Has No Diagnosis.
This is one of the situations we are most experienced with. Undiagnosed children are not turned away — they are our specialty. We connect directly to the programs with the highest solve rates in the world.
America's Finest
Pediatric Hospitals
Children travel from 21+ countries to reach these institutions. MediPocket gives your family direct, coordinated access — from your home, in days.
Genetics and genomics program treats children from 100+ countries annually. Undiagnosed Disease Program. Pioneer in rare genetic conditions and novel gene therapies.
Pioneered SMA gene therapy pathway. Leader in DMD, metabolic, and blood disorders. Patients from 60+ nations. The definitive center for pediatric gene therapy in the United States.
Rare disease program sees undiagnosed patients from across the US and internationally. Leader in neuromuscular, metabolic, and inflammatory conditions. World-class research integration.
Rare disease program serves families from 50+ countries. Strong Middle East and South Asia patient base. Internationally recognized rare and genetic disease programs.
Unmatched in pediatric rare cancers and genetic tumor syndromes. Accepts international patients from 78 countries. Free treatment programs available. No child is turned away for inability to pay.
The gold standard for cases that have defeated every other center. Federal research program for the most complex undiagnosed cases in medicine. MediPocket navigates the referral pathway.
Genomics, rare disease and neuromuscular conditions leader. Extensive gene therapy research and clinical trial portfolio. Strong international referral pathway.
Pediatric oncology and rare disease leader on the West Coast. NCI-designated comprehensive cancer center. Strong rare disease and hematology programs.
What MediPocket Does
for Your Family
Five services. All coordinated. All built around your child.
We review your child's complete medical history, prior test results, and symptom history — then identify the right US pediatric specialist or diagnostic program with the best chance of finding the answer.
Second opinions change the diagnosis or treatment plan in 1 in 3 complex pediatric cases. Before your child starts a major treatment — know it is the right one.
The US runs more pediatric clinical trials than any country in the world. Many of the most promising gene therapies and targeted treatments exist only within trials. MediPocket has directly matched children with DMD and other genetic conditions to active US clinical trials.
Gene therapy has transformed outcomes for children with SMA, SCID, hemophilia, sickle cell, and more. Accessing these treatments — especially from outside the US — requires specialist navigation that most families cannot do alone.
Traveling internationally with a sick child is one of the most demanding journeys a family can undertake. MediPocket manages every logistical detail — so you can focus entirely on your child.
Navigating Alone vs.
With MediPocket
From Your First Message to
Your Child's Specialist
Four steps. One coordinator. Nothing left to you.
Submit Your Child's Case
Tell us your child's diagnosis or symptoms, country, medical history. Free to submit. No commitment to anything. Takes 3 minutes.
Case Review & Navigation Report
Dr. Priyanka's team reviews your case and produces a personalized navigation report — matched centers, specialists, trials, and gene therapy options ranked in order.
Specialist Connection & Care Plan
We connect your family to the right specialist, hospital, or trial. Records prepared and submitted. You just show up — we have handled everything else.
Coordination & Ongoing Support
Travel, visa, accommodation, records, billing, trial support, and ongoing US specialist telehealth follow-up from home. We stay with your family.
"Every child who comes through MediPocket's Pediatric Rare Disease Program receives a personal case review from our physician team. We do not send generic referrals. We read every record, review every test, and identify the specific physician, hospital, or trial that gives your child the best possible next step.
We have helped children from 21+ countries reach America's top pediatric hospitals — for second opinions, clinical trials, and treatments including gene therapy. Every one of those families deserved exactly this. So does yours."
Families We Have Helped
— 21+ Countries
Every family below was navigating a system that was not built for their child's condition. Until they found MediPocket.
Submit Your Child's Case.
Free. No Commitment.
Our physician team responds within 24 hours. We review every case personally and produce a navigation report specific to your child.
Children Who Found Their Path.
Families Who Found Their Answer.
"Our Son Had DMD. We Were Told No Trials Were Open to International Patients. MediPocket Found One."
After three years of watching our son's condition progress, we had been told repeatedly that the US gene therapy trials were not accepting international patients. MediPocket reviewed our case and identified a CHOP trial that our son's mutation profile qualified him for. The coordinator navigated the records, pre-screening, and visa in three weeks. Our son is now enrolled. There are no words for what that means.
"6 Years. No Diagnosis. Boston Children's Named It in 3 Weeks."
Six years of testing, six years of specialists telling us they didn't know. MediPocket reviewed all our records and identified Boston Children's Undiagnosed Disease Program as the right match. Three weeks after submission, our daughter had her first confirmed diagnosis. The relief of finally knowing — after six years of not knowing — is something I cannot put into words. We are now in treatment planning.
"They Said Gene Therapy Wasn't Available in India. MediPocket Got Us to CHOP."
Our son was diagnosed with SMA Type 1. Every doctor we saw in India told us Zolgensma was not available to us. MediPocket contacted us within a day of our submission. They explained exactly what we needed, helped us with the records and visa letter, and coordinated with CHOP directly. Our son received Zolgensma at 8 months old. He is now 2 years old and hitting developmental milestones we were told he would never reach.
What Parents
Ask Us Most
Yes. Undiagnosed cases are one of our most frequent and most important services. We connect directly to NIH Undiagnosed Diseases Network and whole genome sequencing programs that solve up to 40% of cases that have defeated every prior test. We have helped children who had been undiagnosed for years receive their first confirmed diagnosis within weeks of connecting to the right team.
Yes. Boston Children's sees children from 100+ countries. Texas Children's from 50+. St. Jude from 78 nations. We coordinate every step — visa letter from the US hospital, travel, housing near the hospital, translation, and medical records — so you arrive with everything already in place.
Not always. Gene therapies for SMA (Zolgensma), sickle cell (Casgevy/Lyfgenia), hemophilia A (Roctavian), hemophilia B (Hemgenix), SCID, and rare inherited blindness (Luxturna) are now FDA approved. Many more are in active trials for DMD, Rett syndrome, Angelman syndrome, and others. We check what applies to your child specifically — their condition, their mutation profile, their age, and their prior treatment history.
Most video consultations are scheduled within 48–72 hours of record submission. Urgent cases can often be prioritized. We tell you exact timing before you commit to anything — no surprises.
The initial case review is completely free. Navigation and coordination services are priced depending on the scope of services needed. We provide full cost transparency before any commitment — no hidden fees, no surprises. You always know exactly what you are paying for before you pay for anything.
We will tell you honestly and immediately — at no charge. We will also direct you to the best alternative resource we know of. We never leave a family without a next step. If we cannot be that next step, we will make sure you know exactly where else to turn.
Your Child Deserves
the World's Best Answer.
We Help You Find It.
Submit your child's case today. Free. No commitment. Physician team responds within 24 hours. We review every case personally.
Because we know rare disease does not follow office hours.
Because we know rare disease does not follow office hours.